Uriel E. Owens
Sickle Cell Disease Association of the Midwest
Break the Sickle Cycle

Our Mission

Provide information and awareness about Sickle Cell Disease, to advocate for the needs of persons with Sickle Cell, and to support research to find a cure.
Our Services
Emergency Financial Assistance
Utilities, Prescriptions & Food
Referral Assistance
Benefitting Students with Sickle Cell Disease
Public Education
Health Fairs, Speakers, Workshops & One-on-one Counseling for Individuals or Families
About the Disease
Sickle Cell Disease is an inherited blood disorder that affects the red blood cells. Normal red blood cells are round and shaped like a donut. They carry oxygen and nutrients throughout the body. Sickle cells, however, are abnormally shaped and cannot carry oxygen well, and they have a shorter life span than normal red blood cells. As a result, anemia is constantly present. Sickle Cells are rigid and their abnormal, “sickle” shape causes them to clog in the blood vessels preventing the delivery of oxygen to tissues and organs. The anemia and obstruction of blood flow are the cause of the many health problems associated with Sickle Cell Disease.

The most common and impactful feature of the disease is the occurrence of pain attacks caused by the sickle cells clogging the blood vessels. These attacks may occur at any time and in any part of the body and are of varying severity and duration. Sickle Cell Disease also causes fatigue, higher risk of infections, stroke, necrosis, loss of appetite, and other serious manifestations throughout the body and organ systems.

Bone marrow transplant is the only known cure for sickle cell. However, not all sickle cell patients may qualify for this treatment. The drug Hydroxyurea is now being widely used as a treatment for sickle cell and has had a beneficial effect for many sickle cell patients. Conventional treatment consists of managing the health problems as they occur.

Persons who carry the gene for Sickle Cell Disease have what is known as Sickle Cell Trait. Persons with Sickle Cell Trait are healthy and rarely have physical manifestations of the disease except under very extreme conditions. Persons wanting to have children should know their sickle cell status. If two people who have sickle cell trait conceive a child, they have a one in four chance of having a child with Sickle Cell Disease.

Uriel Owens suffered greatly from Sickle Cell Anemia but despite the debilitating effects of Sickle Cell Anemia, he made outstanding contributions to his community.

As a well-known civic leader in Kansas City, Kansas, he helped to establish the Juniper Gardens Children’s Project. For several years he was Director of the Economic Opportunity Foundation, an anti-poverty organization in Kansas City, Kansas. He was an active member of the Democratic Party and was a delegate to the Democratic Convention in Miami, Florida in 1972.

Owens had often expressed the need for an organization that could assist sickle cell patients and their families in various ways.

After his death on October 16, 1980, family members and close friends of Uriel decided to establish a sickle cell organization in his honor. The Sickle Cell Disease Association of the Midwest was established on January 19, 1981. The association continues to provide assistance to persons with Sickle Cell Disease, and to educate the community about the disease.
National Heart, Lung & Blood Institute Health Information Center
P.O. Box 30105
Bethesda, MD 20824-0105
Phone: 301-592-8573
Web: www.nhlbi.nih.gov
National Institutes of Health
Partners against Pain
Sickle Cell Information Center
Sickle Cell Resource Center
Truman Medical Center
2301 Holmes
Kansas City, MO 64108
Phone: 816-404-4290
Fax: 816-404-4295
Juniper Gardens Children’s Project
444 Minnesota
Kansas City, KS 66101
Phone: 913-321-3143
Web: jgcp.ku.edu/
Sickle Cell Disease Association
Foundation for Sickle Cell Disease Research
Sickle Cell Warriors
Sickle Cell Information center
Contact Us
Sickle Cell Disease Association of America Uriel Owens Chapter
Executive Director: Eric Uriel Kirkwood
Address:  444 Minnesota Ave.
Suite 300
Kansas City, Kansas 66101
P.O. Box 17-1371
Kansas City, Kansas 66117
Phone:  913-735-2622
Fax:  913-371-8522
Email:  owens@sicklecellkck.org

Uriel E. Owens Sickle Cell Disease Association of the Midwest
444 Minnesota Ave.
Suite 300
Kansas City, Kansas 66101
Break the Sickle Cycle